Yesterday (and earlier in the month) I mentioned myPCOSteam, which is one of the PCOS forums I use and which was responsible for opening up this whole world of research and treatment I had no idea about. The site is a year old and has more than 13700 users at present. It’s part of a cluster of websites that form MyHealthTeams and run websites for other illnesses as well as PCOS. The company is based in San Francisco and, on a personal level, have been very friendly in all my encounters with them. Their ‘About‘ page tells you pretty much all you need to know about the company but if you’re not sure about it, this is what they’re about:
“myPCOSteam is a free social network that makes it easy for you to:
- get the emotional support you need from others like you, and
- gain practical advice and insights on managing treatment or therapies for PCOS
When you or a loved one are first diagnosed, it’s not uncommon to feel alone and uncertain of where to find the best information and people that can help you now. We believe in making it easy to find the best people around you to help you get the answers you need, and to find support from people who can truly relate. The main currency on our site is trust – the more you share in posts and your stories, the more questions you ask and answer, the more your support will be valued by other members.”
I contacted the team to ask if anyone would be interested in making a statement for this month, since I was running it on the site, and they pointed me to this great post which is an interview with Megan Stewart, the founder of myPCOSteam and PCOSAA. It talks a little bit about how often women reach out because they feel like they’re alone with this illness and what drove Megan to reach out and set up the site.
It’s one small step in a long chain of events that will hopefully open the eyes of the world to the huge elephant in the room that is PCOS. One voice alone cannot do much, but a collective is a powerful thing.